Well, Entocort totally blew it. I think we all suspected this was going to happen, though. The pain has worsened, and I fear surgery is now inevitable and soon. For the last couple days the pain has been to the point where I just have to focus on breathing to get through it, and anything to get my mind off it (which is really impossible, but my "cheap" list helped). It's the worst at night.
About a month ago my GI gave me a script for Percocet and I lost it (smart move). I'm on something else for pain but it's no longer getting the job done. I miss the Dilaudid! I hate to say this, but I think I have the (smallest) glimpse into why people develop narcotic addictions. When I was in the hospital and they shot that through my IV, it was in complete and utter bliss. A warm wave of soothing relief; I just closed my eyes and bathed in that. Next week I see my GI again, and the following Tuesday I have an appointment with another GI for a second opinion. And I can't stop thinking about work. A team member is going on maternity leave next month, and so they will already be short-staffed. When I mentioned surgery is a possibility, I said, "Oh, yeah, two weeks, three at most" but now I'm reading about it more and I think I was a bit too cavalier. This is major surgery! I'll be having almost a foot of my small intestine cut out! That gives me the willies.
Matt and Penny have been very supportive. Although they hate spending their evenings in the bedroom, they keep me company as I lay in bed (well, Penny whines occasionally....and now that I think about it, Matt does too), although right now they're both sleeping peacefully.
I hope you have a good night, too.
Kathryn--that is totally sucky news. Mom
ReplyDeleteYes, it is. And mother, for someone with a Master's degree, you sound very valley girl-esque, I must say. ;-)
ReplyDeleteOh boy, that's scary! Hang in there! A friend of mine had much more drastic surgery than that even, and she is now doing great, pain free and able to eat anything she wants. It might be a long road, but you can do it. Hang in there!
ReplyDeleteThanks BrightSide! I'm trying, but I'm not going to lie, I'm just getting very tired of all of this (but I know it could be much worse).
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